Dear friends and family,
Many of you know our almost 12-year-old nephew, Maxime, has Friedreich’s Ataxia (FA), a rare genetic disease that causes difficulty walking, a loss of sensation in the arms and legs, impaired speech, progressive nervous system damage, and shortened life expectancy. Generally, within 10 to 20 years after the appearance of the first symptoms, the person will require the use of a wheelchair. Max first presented symptoms at the age of 5.
Since his diagnosis, we’ve been actively involved in fundraising for Ataxia Canada — and for the last 4 years, Nic has been on the board of Ataxia Canada, a volunteer role, to help affect change in the lives of patients like Max.
This year, we’re excited to travel to Montreal to participate, for the first time as a family of four, in the annual Ataxia Canada challenge — along with Max and our extended family.
Please consider donating to our team to help Ataxia Canada provide support and resources, further research treatments, therapies, and ultimately a cure for FA, benefiting patients like our sweet nephew Max.
Nic, Bri, Sebastien and Vincent Théberge